Rare Disease Taskforce Newsletter: The European Commission announces the appointees of the new European Union Committee of Experts on Rare Diseases
OrphaNews Europe press release:
The Official Journal of the European Union on 28 July 2010 published the Commission Decision on the appointment of the expert members of the European Union Committee of Experts on Rare Diseases (EUCERD) culled from the responses to four calls for expression of interest which specified the qualifications and conditions required to become members of the new Committee.
…
The new appointees hail from the European rare disease information and reference portal Orphanet, European patient organisation EURORDIS, various academic and research institutions throughout Europe, as well as pharmaceutical companies that demonstrate a commitment to developing rare disease products, including Genzyme, Celgene, Orphan Europe, and Baxter.
In addition to these committee members, one representative of each of the 27 Member States is to be appointed by its Member State, along with a representative of the European Centre for Disease Prevention and Control (ECDC) to be appointed by the ECDC.
The full article is available online at http://bit.ly/9Meq3W.