Skip to content

PNH alliance – A partnership for rare diseases

Useful links

  1. PNH Source

    Spanish PNH resource website.

    http://www.pnhsource.eu/

  2. Rare Disease UK

    The National Alliance for people with rare diseases and all who support them.

    http://www.raredisease.org.uk/

  3. EURODIS

    A non-governmental patient-driven alliance of patient organisations and individuals.

    http://www.eurordis.org/

Politics and policy

RSS feed

  1. Ministers amend Health & Social Care Bill

    Posted on 11th July 2011

  2. Health & Social Care Bill delayed

    The controversial Health & Social Care Bill has been delayed by ten weeks to enable Ministers to “listen and engage” over widespread concerns that the Bill will introduce a market based economy into the NHS at the same time as it needs to make substantive savings.

    Posted on 18th April 2011

  3. The Government responds to stakeholder opinion on the NHS reforms

    On 15 December the Department of Health published its response to the consultation on the NHS White Paper.

    Posted on 10th January 2011

Articles

RSS feed

  1. PNH Patient to receive funding for eculizumab

    Posted on 17th January 2012

  2. Patient loses her appeal for life-saving NHS treatment

    Posted on 22nd September 2011

  3. The Herald reports on patients’ demands to end Scotland’s drug lottery

    Posted on 22nd September 2011